Parent Resources

Useful Links and Resources
Please click on the colored resource for additional information. 

If any of the following links on this page are incorrect please email our Information Technology Department at it@nbpw.org


Georgia:

Families of Children Under Stress (FOCUS): Support group for families of children with disabilities and other special health care needs.

Georgia Advocacy Office: The Georgia Advocacy Office (GAO) is a private non-profit corporation. Its mission is to work with and for oppressed and vulnerable individuals in Georgia who are labeled as disabled or mentally ill to secure their protection and advocacy.

Georgia Council for the Hearing Impaired: A statewide nonprofit organization that provides a variety of assisting services to children and adults with hearing impairments and their families, friends and state and federal agencies.

Georgia Department of Education/Division for Exceptional Students

Georgia Division of Family and Children Services: Information on food stamps, TANF, Child Care Assistance Program.

Georgia Learning Resources System: A network of 17 Georgia Department of Education sponsored centers throughout Georgia that provide training and resources to educators and parents of students with disabilities.

Georgia Tools for Life: This group's mission is to increase access to assisting technology devices and services for Georgians of all ages through help with scholarships and training. 1-800-497-8665

Georgia School Age Care Association: Statewide, member based, professional organization for those who work with school-age children in after school programs, before school programs, or during the summer. GSACA trainers provide training, technical assistance and consultation to providers and assist programs with accreditation.

Georgia Health Law Partnership: An interdisciplinary community collaboration among the Atlanta Legal Aid Society, Children's Healthcare of Atlanta, and Georgia State University College of Law to improve the health of low-income children and their families. Offers public health legal services to eligible families of children with health care issues.

Governor's Council on Developmental Disabilities: Provides information and advocacy activities, program implementation and funding and public policy analysis and research to influence public policies that enhance the quality of life for people with disabilities and their families.

Institute on Human Development and Disability: Federally funded program that works with others to create opportunities that will improve the quality of life for people with disabilities and their families.

Kids Health: Information and resources related to health and nutrition.

Lekotek of Georgia: This program will loan adapted and traditional toys to families to use at home and provides individualized support and resources. The program's goal is to make play successful and interactive for children with disabilities through the use of adapted toys and computer equipment.

Peachcare for Kids: Affordable health insurance for uninsured children birth to eighteen. 1-877-GA-PEACH

Sickle Cell Foundation of Georgia: Nonprofit organization formed to share and advance knowledge and research about sickle cell disease and other hemoglobin abnormalities and to improve the quality of life of those battling the disease.

Wrightslaw Yellow Pages for Kids: Listing of Georgia-based therapists, support groups and other resources for children with disabilities and their families.

National:

American Academy of Pediatrics: Health information.

Americans with Disabilities Act: Information and Technical Assistance on the American with Disabilities Act.

Body and Mind: Site sponsored by the Centers for Disease Control with health and safety information for children.

Centers for Disease Control and Prevention: Health information.

Center for Early Literacy Learning: Provides research-based information and activities designed for use by parents and care providers to promote literacy learning by children with disabilities.

Center on the Social Emotional Foundations for Early Learning: Training materials and resources to promote the social emotional development and school readiness of children birth to five.

Center for Inclusive Child Care: Online training modules on a variety of topics related to inclusion of children with disabilities.

NEW!Cerebralpalsyguidance.com/cerebral-palsy
Learning that your baby or child has cerebral palsy can be devastating news. Yet, by educating yourself, including learning about treatment options and how to help manage the disorder, your child can still live a productive life. 

Circle of Inclusion: Site offering demonstrations of and information about the effective practices of inclusive educational programs for children birth through age eight.

Commonly Asked Questions about Child Care and the American with Disabilities Act: Answers from the U.S. Department of Justice on common questions about the ADA.

Do2Learn: Games, songs, communication cards, print resources and information to assist with adaptation of learning environments for children with disabilities.

 

Father's Network: Resources and support for fathers and families raising children with special health care needs and developmental disabilities.

The Federation for Children with Special Needs: Various resources for families of children with disabilities and those who care for them.

Kids Together: Site with information and resources devoted to promoting inclusion of children and adults with disabilities in their communities.

Education.com Site with a variety of information and resources for teachers of children with disabilities.

National Dissemination Center for Children with Disabilities: NICHCY offers a wealth of information on disabilities! This site offers excellent information on disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.

Positive Behavior Supports: Visual supports and activities to promote independent reasoning skills.

Special Quest Birth to Five: Training resources on inclusion.

Wrightslaw: Information and resources related to special education law.

Disability/Health Specific Links

Asthma: American Lung Association site which provides information for parents and providers about asthma in children.

Autism: Autism Society of America site with information and resources to improve the lives of everyone affected by autism.

Blindness/Visual Impairments: American Foundation for the Blind site which provides information and resources for people with visual impairments and their families. Families will be especially interested the Family Connect section which is geared toward children and their families.

Brain Injury: Brain Injury Association of America site providing information and resources to people affected by traumatic brain injury.

Cerebral Palsy: United Cerebral Palsy of Georgia site providing community- based supports and resources to families with children with developmental disabilities.

Chromosomal Disorders: National Organization for Rare Disorders (NORD) provides information about diseases, referrals to patient organizations, research grants and fellowships, advocacy for the rare-disease community, and Medication Assistance Programs that help needy patients obtain certain drugs they could not otherwise afford.

Diabetes: Juvenile Diabetes Research Foundation International site with an online diabetes support team as well as practical information about diabetes and its management.

Down Syndrome: National Down Syndrome Society site with information about education, research and advocacy.

Epilepsy: Epilepsy Foundation of Georgia provides support groups, educational resources, advocacy and other services for Georgians with epilepsy/seizure disorders

Children who are tube-fed: Parent2Parent website which provides information about reflux and the use of feeding tubes. There is also a message board where parents can post questions and concerns.

Children who are tube-fed: Kids with Tubes website which provides support and services for parents and caregivers of children who are tube fed. This site also provides a series of newsletters with topics of interest to parents and providers.

Fragile X: The National Fragile X Foundation site which provides educational and emotional support to families and caregivers of people with fragile X as well as information to promote awareness and understanding of Fragile X.

Spina Bifida: Spina Bifida Association of Georgia site which provides information and support to families and caregivers of children with Spina Bifida.

Tourette Syndrome: National Tourette Syndrome Association site which provides information and support to people with Tourette Syndrome and their families.